New Diagnosis

So you, or someone in your care, have received an epilepsy diagnosis. Now what? Here at Epilepsy Queensland, we understand that this can be a stressful time with change and challenges to be navigated. We want you to know you are not alone.

New diagnosis of epilepsy

Everyone responds differently to a new diagnosis and you may experience changing emotions throughout this time. It is important to understand that it may take time to adjust and there is no right or wrong way to feel or respond. There are resources and supports available to help you with this transition.

Epilepsy Queensland has a dedicated helpline at 07 3435  5000 (Brisbane metro) or 1300 852 853 (outside Brisbane) if you would like to speak confidentially with one of our caring professionals.

You may also like to connect with others through our support groups and meetups. You can also check What’s On to find out about upcoming events.

We would love you to join us on FacebookInstagramTwitterLinked In and YouTube, which provides current news and information with respect to epilepsy.

Understanding epilepsy

There can be some misunderstanding about epilepsy and seizures, but it is actually a common condition.

Epilepsy is highly individual: some people will experience seizures throughout their life, whilst others may have epilepsy for just a period of time. To learn more about epilepsy you can visit the following pages:

What is epilepsy?

Facts about epilepsy

What is a seizure?

Seizure classification

Seizure types 

 

Managing epilepsy

There are some things that you can do that will perhaps help to ease anxiety and improve your confidence to manage your newfound condition:

Educate yourself

  • Understand the condition to best manage it
  • Identify seizure triggers to minimise the occurrence of seizures if possible
  • Be proactive and seek out support 
  • Be aware and manage symptoms of anxiety and depression if they arise
  • Create an epilepsy management plan 

Educate others

Whilst disclosing your health status is a personal decision, telling those close to you will help you develop strong support networks. This also ensures people are aware of your condition and can provide assistance to you should you require it.

Epilepsy Queensland delivers workshops  on “Understanding epilepsy and the administration of Midazolam” and also has a great range of informative factsheets and booklets to share such as the “Diagnosing Epilepsy” booklet – click here.

Take medications as prescribed

  • Try to take medication at the same time each day
  • If you do miss a dose, check the medication information sheet or speak to your GP/pharmacist
  • Check before taking other medications or supplements- advise your specialist

You can find more information about epilepsy treatment here

Identify and manage seizure triggers

To learn more about seizure triggers click here. 

 

 

Find a neurologist or epilepsy specialist- who do you need to see?

Finding a specialist that you can communicate openly and build a strong relationship with, is important to managing your condition. Contact our Services team if you would like to speak to someone about this.

You may also find the information on our “What to take to your neurologist” page helpful. 

 

 

Adapting to daily life- safety

Whilst many people with epilepsy live active and fulfilling lives, there are certain risks inherent with the condition that need to be considered. See below for some additional information:

Safety checklist

Risk management

Epilepsy management plan

 

Remember: you are not alone. We are here to help you.