Latest news and information

Nathan Garvie of Brenorrs, Roma launched his thoughtfully-designed Epicool work shirts at Beef 2021, reports Ashley Walmsley for The Queensland Country Life. Five dollars from the sale of every shirt will go to Epilepsy Queensland.

Epilepsy Queensland is proud to have been selected as a VIP charity partner for the 2021 Bridge to Brisbane Fun Run. By joining the Epilepsy Queensland Team you will make an difference to the 30,000 Queenslanders living with epilepsy.

Epilepsy Queensland works proactively with universities and other research institutions to ensure people living with epilepsy have access to research.

22 -year-old Brisbane woman Maddie Gill sadly passed away from SUDEP in December 2020. You can contribute to her family's fundraising efforts here.

Purple Day is Epilepsy Queensland's biggest awareness and fundraising event of the year. We'd love you to join in with us!

How much do you know about epilepsy? Put your knowledge to the test with our #MakeMarchPurple for Epilepsy Quiz!

Show you care and dare to be covered in purple muck to raise funds and awareness for the 65 million people around the world whose lives are interrupted by epilepsy!

This March Epilepsy Queensland needs to raise $100,000 to ensure that we can continue to deliver essential support services to more than 30,000 Queenslanders living with epilepsy.

Become the host with the most this March. Host a morning tea, a BBQ, a girl’s night in or even a games night. Host at home, at work or the local park – the choice is yours. Help raise funds and awareness for epilepsy.

Shop purple epilepsy supporter merchandise here.

Join the ultimate Purple Day Event on March 26 and climb the Story Bridge at twilight just as it lights up purple for World Purple Day. There is no better way to make March Purple for epilepsy!

An estimated 12,000 children in Queensland are currently living with epilepsy. Purple Day is a wonderful way for your school to show support for children and teachers living with epilepsy and help raise awareness and vitally needed funds.

Find out how Epilepsy Queensland is serving the epilepsy community.

To coincide with International Epilepsy Day, Epilepsy Queensland introduced a new visionary awards program, with each award aligning with the values of our organisation. Congratulations to our deserving award recipients for 2020.

Melissa's 12 year old son and father live with epilepsy. Read about Melissa's thoughts on epilepsy care and how our organisation can have the biggest impact for people living with epilepsy.

In the lead-up to International Epilepsy Day and our awards on 8 February, we interviewed our ambassador, Lakeisha "Lucky" Patterson OAM. Lucky generously shares with us her experience of living with epilepsy, her involvement with our organisation and her passion for raising epilepsy awareness in the wider community.

Nicole is a two-time stroke survivor and was diagnosed with epilepsy after her second stroke in 2016. Find out more about Nicole's battle with medication side- effects, her passion for seizure first aid and stroke awareness, and her hopes for the future.

The Therapeutic Goods Administration has provisionally approved the Pfizer/BioNTech COVID-19 vaccine for use in Australia. Ahead of the roll-out, we have compiled a list of Frequently Asked Questions about epilepsy and COVID-19 vaccinations.

A number of you have made contact to let us know that more support and connection is needed for families who have lost someone to epilepsy. Epilepsy Queensland would like to work with you to make this possible.

Neil, 44, from Banyo, Brisbane has a tale of incredible fortitude to share with us. When he emigrated from the UK in 2008, a year after meeting Aussie woman, Shannon, (now his loving wife), little did he know Australia’s sunny shores would hold some bleak times and be the place where he would endure four surgeries. As he points out, "Three of these were on my head!"

Brett, 25, has been living with epilepsy since he was born, after a difficult birth in which his Mum was whisked away for an emergency delivery. With support and understanding, Brett has built a busy and rewarding life, proving living well with epilepsy can be possible.

Your kind and valued support enables us to reach out and help more people and families living with epilepsy.

SUDEP (Sudden Unexpected Death in Epilepsy) is defined as an unexplained or unexpected death in a person with epilepsy where no clear cause of death is determinable after a postmortem examination.

Having a diagnosis of epilepsy may impact your driving status. At Epilepsy Queensland, we understand the challenges and concerns relating to a change in driving status, even if this is on a temporary- basis. It is important to discuss transport and driving guidelines with your GP or neurologist to determine your travel options.

So you, or someone in your care, have received an epilepsy diagnosis. Now what? Here at Epilepsy Queensland, we understand that this can be a stressful time with change and challenges to be navigated. We want you to know you are not alone.

The latest Play for Purpose draw is open. Lottery tickets are only $10 each and you have the chance to win a share of $500k in prizes! What’s more, every ticket sold means we can dedicate more funding to improving the quality of life of people with epilepsy.

For people with epilepsy, employment is often an important focus. Many people with epilepsy can, and do, find and maintain work. People with epilepsy can work in a range of occupations and generally epilepsy is not a factor in a person’s ability to do a job well.

Functional Neurological Disorder (FND) is a collection of symptoms such as blackouts, paralysis and atypical movements that suggest the presence of an underlying neurological condition, yet cannot be explained by disease or anatomical abnormalities.

Madaline Guilk embodies the spirit of determination. The nineteen-year-old from Ipswich, who lives with a rare form of epilepsy called Jeavons Syndrome and Autism Spectrum Disorder (ASD) is a resilient person who is focused on giving back.

Epilepsy Queensland provides ‘Understanding Epilepsy’ & ‘Seizure Recognition, First Aid and Administration of Midazolam’ training.

One in ten people will have a seizure in their lifetime, which means it is likely you will encounter someone who may need your help. At Epilepsy Queensland it is our aim for one person in every household to know basic seizure first aid.

Some people with epilepsy find that certain factors may induce seizures- these are known as seizure triggers. Find our fact sheet and information about seizure diaries here.

Epilepsy Queensland's support groups and meet-ups provide an opportunity for people to connect. They are currently operating via online videoconferencing platform, Zoom.

We need you! Challenge yourself and become our event champion.

Epilepsy is a complex and multi-faceted condition and it is normal and expected that people have a range of questions.