Increasing awareness of epilepsy in the community and supporting people with epilepsy are the key goals for Epilepsy Queensland. We strive to provide support, counselling, information, education, training and advocacy services to people with epilepsy and their families, schools, health professional as and disability services.
Epilepsy Queensland's services and resources are outlined below and in details on the following pages.
Information - a large range of information sheets and booklets on all aspects of epilepsy which we are happy to send out to you at no charge.
Helpline and support - our services team will provide information in response to your queries about epilepsy and talk with you about epilepsy related concerns. You can make an appointment to come into our office for personal counselling.
Hospital visits – we provide additional information and support to patients and families attending hospital epilepsy units or out-patient clinics.
Family Support Program – our family support coordinator can help families who have a child with uncontrolled epilepsy or epilepsy and another disability. Families receive quarterly newsletters. Home visits, workshops, support networks, and advocacy to schools and childcare centers can be arranged.
Inservice training and professional development for allied health, disability and education staff.
Emergency Medication – we offer training for the administration of Midazolam for individuals and organizations.
Management Plans – we assist in the development of individual management plans and emergency medication management plans.
Children’s Program – Children in the Little Poss club receive a birthday card from Poss every year and their own newsletter every second month. Our educators visit schools to deliver training for teachers about epilepsy. We also have specific resources for children and schools.
Internet - Epilepsy Queensland has four key websites:
- www.epilepsyqueensland.com.au for general information
- www.littleposs.com for children
- www.postcardsfromepiplace.com.au for personal stories
Workshops – for women with epilepsy, men with epilepsy and parents of children with epilepsy are held regularly.
Seminars – as well as a major epilepsy seminar during the Epilepsy Awareness Campaign, other seminars are held on a regional or needs basis.
Regional visits throughout the year, to disability organisations, schools, childcare centers and individuals affected by epilepsy.
Community awareness and education Epilepsy Queensland is constantly working to increase community awareness of epilepsy, whether it’s talking to community groups, visiting organisations, or running campaigns in the media.
Advocacy – we can help advocate on your behalf where appropriate.
Referrals to other agencies for information and support where relevant.
Research – when funds are available we conduct nonmedical research.