Helpline

07 3435 5000  or

1300 852 853 (Regional Qld)

9am - 4pm (Mon-Fri)

Research

Are you starting on Fycompa?

Would you please consider being part of the Fycompa Patient Registry?
 
  • Registries are an important tool, recommended by health authorities world-wide, to obtain more in-depth, high quality information on the effectiveness and safety of a new drug. This registry will help your doctor understand and use your medication more effectively.
  • This registry is recruiting: Patients with refractory epilepsy who are being started on Fycompa (perampanel)
  • Patient involvement includes 3-monthly questionnaires on seizure severity, quality of life and side effects, by phone and mail, and keeping a daily seizure diary (over a 12-month period).
  • Contact: Yvonne Gautam, Tel: 3646 2523, yvonne.gautam@health.qld.gov.au
 

Epilepsy Queensland Supporter & Client Survey

There have been many changes over the last couple of years and it has been a while since we asked “what matters to you?”.   
 
With this in mind, we invite you to give us your feedback. To tell us what you believe our priorities should be for the next 12 months and how we can best serve you. 
 
We hope to take no more than 11 minutes of your time. However your feedback is very important to us, so if you wish to take longer than please do so.
 
Your responses will be anonymous unless you wish us to contact you further.  At all times your feedback will be treated with the utmost confidentiality.
 
If you would prefer to be interviewed over the phone, or would like a paper version of the survey to fill out, please contact us on 3435 5000 or via email services@epilepsyqueensland.com.au
 
Please use this url to get to the survey https://www.surveymonkey.com/r/letterfromheleneq or the link below.

Create your own user feedback survey

 

Support worker survey

Are you a support worker?

Can you help Epilepsy Queensland improve our services?
 
Please complete our brief survey to help us help you